Home sweet home...

After spending two weeks in the hospital, we were discharged Friday afternoon!  I would have 'blogged' that day but you wouldn't believe how fast the room and the lap top gets packed once the word "discharged" is uttered.
After her drain was pulled, we needed to make sure she didn't have any issues and there wasn't any reason to stay in the hospital if not necessary. That night into the next day she slept alot but didn't show any signs of discomfort.  Dr. Somme checked in with us and agreed that she was ready to go home.  She still has some ascites and we have been sent home with a diuretic to treat it. Her body is not as full of fluid but her stomach is still distended, but soft.
She currently takes a liver medication (Ursodiol), a diuretic, Vitamin A, VitD , VitE, VitK as well as a multivitamin (ADEK), all 2x daily.  Sometimes it feels like all we do is give her medication. Her diapers have been stinkier and yellower (yes, I said yellow-er) than they ever have been!  Now, we can hope that the "classic" kasai procedure will do the trick and create the liver function she needs, all the while preventing any further damage of the liver. Sending strong messages into the universe for NO TRANSPLANT PLEASE.....Of course, there is a strong possibility we will be in Denver again to treat cholangitis when it happens. It is pretty much unavoidable, and we cannot go to our local hospital to treat it. We just don't know 'when' that will be.
Daddy stuck around an extra day so we were able to ride home with him.  MercyMay's first road trip! We stayed in Casper last night and finished the drive today. Home. Yes.
Next Thursday, we will see Dr. Narcewitz (sp) in Billings who is one of the liver specialists at TCH to check on Mercy's progress. Meanwhile, we will rest and relax. Try to get back to normalcy as much as we can and enjoy every day, for healthy days are a gift and a blessing.
Where there is love, there is hope.  THANK YOU for your continued support.