"Every day feels like a holiday....when my baby comes home..."

It's official. The minivan has been purchased.....and we are loving it. 
Yesterday was a lab day which is always filled with anxiety while waiting for the results.  In the meantime we headed to Target (Aimee, I didn't see you there...?) to pick up a highchair for Miss MercyMay. After sitting in one for the first time at Grandma's, she was excited to have her own at home.  So cool to watch her get excited about the little things ... like the sound of lips smacking together after eating or drinking something really tasty followed by a satisfied 'aaah'.  She got so excited a couple times she was shaking ... so cute and so hilarious! While in Target, we get the phone call....."Mercy's labs are all over the place, so it's probably good you're going to Billings tomorrow to see Dr. Narkewicz".  
(Enter: thought process going wild)
(Enter: rational thinking ~ yellow stool + bile = good)
Then we get home to a message from Dr. Narkewicz's nurse in Denver .... "Mercy's labs are much worse". Her liver enzymes were elevated again and her bilirubin had increased a little.  You can imagine how we are feeling at this point. Wondering. Now what?

We arrived in Billings around noon today and met Grandpa and Nannie for lunch before the appointment.  MercyMay's first restaurant experience was a success. She was a very good baby.  After saying goodbye, we headed to our appointment. Nervous, wondering, over-thinking.........
Dr. Narkewicz examined her and said she was looking really good. Still has a little fluid remaining in the abdomen which should subside over time so we will continue the diuretic. Her skin color is normal, eyes are almost completely white and her stool is yellow. All signs of surgery success so far. So why the crazy lab results??  Well, turns out... we were comparing Denver's lab results to Bozeman's lab results and apparently, they are not comparable because each lab tests differently......what??? SO, the whole time we were stressing out about "worse" lab results and labs "all over the place", we were worrying for nothing?? Yep, pretty much. Wow. Would have been nice to know that. (I could probably rant and rave a whole paragraph here, but let's keep it positive :))
Dr. Narkewicz told us that Mercy will always have elevated enzymes and that the "normals" are not HER normal ranges. Basically, we have to start a new "base line" for her labs based on results we take at home since (hopefully) our travels to Denver for surgeries are done.  Of course, we still have to watch for signs of cholangitis (which would land us in Denver but does not require surgery), but for now she is healthy and doing great!  Dr. Narkewicz was pleased with her progress which made us extremely HAPPY.
We will follow up with labs in 2 weeks, 4 weeks and then see him again in June.
**** Moving forward ~~~~ > ****
We try to maintain an emotional even keel so we don't get too high or too low (which can be difficult at times). We never know what her disease will deliver daily so when we have great day (yellow poop, no fussy, etc.) we really savor it......it is truly like a holiday. Today was a great day :)