Today's report brought to you from 6th Floor Children's Hospital, Colorado....
Mercy was scheduled yesterday to have her Broviac procedure with Dr. Somme. As usual in surgery, she was a champ and did really well. We also got to see Superhero Alan and a few other favorite people here at the hospital. It's kinda weird to be back, it's been 9 weeks this time, but is also quite comfortable since Mercy tends to be quite a "celebrity". Nice to see all of her friends again from surgery and the 6th floor :)
The plan is to keep her here this week to monitor her new feeding through IV and get her to "goal'. She has a small incision on her upper left chest with a single catheter that goes through her vein to her heart to administer nutrition through her blood. Her first night being hooked up went great. Hopefully this will help her gain weight and give her that extra 'ooumph' she needs to grow and develop physically. She no longer has her feeding tube for nutrition which was (I will admit) nice for medication administration (not so fun to put in as you know from past posts). Back to tasting the yucky stuff, sorry nugget.... :(
After discharge, Home Health will assist us with weekly dressing changes, blood draws and overall maintenance of the line. Not too scary after dealing with the PICC line from before. I keep thinking.."wouldn't it be great if we got "the call" while here already?" Wait, that would be too convenient...lol.
I was so glad to see this post.
ReplyDeleteNancy and PaPa are so glad it all went well.
Hope you all are hanging in to.
Boy what a ordeal for Mercy May and you and Rod.
It is sure to bad that such a young trooper has to go through all of this, and just starting out her life.
Love you all.
Nan and PaPa
Billings Mt.
Hey Mercy May, what a trooper you are. Daddy said you were playing with your toys and resuming as usual after your broviac procedure. Grandma misses seeing you. I am so full of hope and faith that this is all going to move in a new direction soon. Be strong little nuggett kisses and hugs from gramdma and gramdpa Dupuis.
ReplyDeleteGlad to hear all went well with Mercy's surgery. It blows me away how strong she is. Must get that from her folks. Definitely an example to us all. Hope you have all you need. Lots of loves, Steph & Joe
ReplyDeleteHello girls..Was great seeing you both. RMH is nice. comfortable surroundings..location, location..heheh Mercy is such a sweetheart. So blessed to have her in our lives.. We are also full of hope & faith..always positive..Love you both..xoxo Donna & family
ReplyDeleteDearest little Mercy, I hear you did great on your surgery. More tubes - yuck! Hope they will make life easier for you. I appreciated mine for blood draws & they made getting medicine lots easier. You're such a tough little girl. I think it amazes all of us how you just take this all in stride & continue to win everyone over with your resiliance & that beautiful smile. Sending our love from up in Montana, Love you, Nannie & Papa Dave
ReplyDeleteWhat a trooper you are MercyMay--maybe that call will come through SOON!!! Lots of love and prayers going your way.
ReplyDeletePatti Lemmon