"Tell me brother, can you see the sun where you're standing now?" ....

8th week on the transplant waiting list, 10th week of being away from home and can't believe we are in the 7th month of what has been our most challenging year ever. The little nugget will be celebrating her 9th month of life this week and it's looking like we will be spending her first birthday with her in Colorado rather than at home. 
We had an appointment with Dr. Narkewicz on Monday.  Mercy's "growth curve" has hit a plateau in several weekly visits which means she is not developing as well as she should (length, weight, head circumference, etc.).  Her weight has not increased OR decreased in several weeks now, even with the feeding tube and added nutrition.  If she has not gained significantly before Monday (7/25), she will be admitted to the hospital (now called Children's Colorado) to have a "broviac" placed.  I don't know much about it other than it is IV nutrition. It is similar to the feeding tube but requires minor surgery because it is placed into the skin.  As with ANY invasion of the skin, there is possibility of infection so my focus will switch to that home care routine rather than worrying about placing the feeding tube if and when she would pull it out (which btw, I got pretty good at and comfortable with!...Mercy, probably not so much ;) As with every scenario in this adventure, it is bitter-sweet. We will remain in the hospital for several days to make sure she is stable to return home (to RMH) and is adjusted to the broviac supplementation.  My wish everyday is that the process would get started and her liver would "come", then we could maybe skip all this in-between stuff.  But the reality is....wait, wait, wait.  Alot of people ask "have ya heard anything yet?"......I say to them, "trust me, the text will go out as soon as that call happens."  The Dr. did say that a few livers have come in but they weren't the "right fit". Damn, there's that bitter-sweet undertone again.  But like he said, there are going to be issues with a liver transplant no matter what (bitter) so let's try to keep the issues to a minimum (sweet). Agreed.