MercyMay had her PICC line put in yesterday which (after the fact) is a great thing. The events leading up to it...not so great. We had to put her on NPO (can't eat due to anesthesia for the procedure) at 4:00 a.m. because her appointment was scheduled at 8:00 a.m..  No big deal because most of that she is sleeping. Then the doctors called down and rescheduled our appointment to 1:00 pm. So this meant, we had a half hour window to pig out, and go back on NPO.  Back to back "no eating" sessions, quite frankly, sucks....for both of us.  But it's over now, moving on.....The rest of the day was spent catching up on some rest and keeping her relaxed.
Her bilirubin is up to 11.7 (it shows in her eyes) and liver enzymes have not improved, but have not gotten worse. Sometimes the response to these treatments is quick and sometimes it takes a month or longer. However, the lack of significant improvement in the last week, has prompted them to begin the process of transplant evaluation.  This does not mean that we are "on the list" yet, but we have a gut feeling that says we're headed in that direction.