The last few days have been spent finishing up the transplant evaluation process and waiting for her labs to improve, which is not happening. Today her ascites has progressed so we will not be discharged tomorrow as originally planned. The doctors from the University Hospital were taking a look at all of her imaging (MRI, EKG, etc.) today to make sure she is a good candidate for transplant. Dr. Karrer thought everything looked great but wanted the backup opinion of the other transplant surgeons. Dr. Karrer, we found out, will be deployed to Afghanistan next week and will not return until Labor Day so he will not be doing her transplant if it happens during that time. That was kind of a bummer, but we know we are in GREAT hands and wouldn't want to be anywhere else. Dr. Bielsky will be her anesthesiologist :) Dr. Narkewicz will present her case to the selection committee next week and hopefully she will be on the transplant recipient list shortly after. **(50% of pediatric liver transplants done nationally are due to biliary atresia)
Then, you wait for "the call"......... the call that says another life has been taken and is ready to be given to MercyMay....this has been a very heavy concept to digest, but we are making the most of every day and we refuse to wallow in self pity....
On a happier note ~
Mercy got to hang out with our "mini-superhero" and talk "baby" with another toddler. She was pretty excited to share that moment with MissJojoEm....
~ DONATE LIFE ~
I know that there are many different people that read this blog (almost 4,000 hits!!) so I want to encourage all of you to become organ donors if you already aren't. I know it's a scary and crazy thing to think about but it could potentially be the biggest gift you have ever given.......
I am able and willing to answer any questions, comments or concerns you may have regarding MercyMay or the process in general...
Hey sweetie !!!
ReplyDeleteYour smiling face lights up the
room baby girl.
Keep spreading that love !!!
Love you tons xxooxx
Daddy
Charity,
ReplyDeleteMy gut tells me that Mercy will receive this transplant and that everything will run smoothly. She will live a very happy life! I love looking at her pictures...she is such a little doll. You can tell that she has so much love around her. Thinking and praying for you often.
Jennifer and Kolton (he's sitting in my lap) ;)
Hi Mercy May, Oh so you have a little friend. How nice.
ReplyDeleteI love it that you see little people and engage in some little people talk. I also heard you had vistors today (cousins). Wow I love it they can get to know you and see what a joy you are, and that great smile . Grandma is going to come see you soon if you don't come home soon. I miss you very much. I know this is a hard time for you right now, but hang in there baby girl things are going to get better very soon. I love you xoxox