Her bilirubin is up to 10.1 (normal is 0.2 - 1.2), her liver enzymes have not adjusted much and her stool is still acholic. Cholangitis, ascites and portal hypertension are all interrelated and have created the symptoms she is experiencing. After doing alot of research on ascites last night, I had a whole slew of questions for the doctors when they rounded this morning. I was told that the cat scan showed that she has a clotted portal vein that is decreasing her flow which is common. The good news is, they have cancelled the notion of a leak in the surgical area (YES). For treatment, they have increased her diuretic intake and also added a different one (LASIX) to help remove some fluid and discomfort. We have started another steroid burst over the next three days and she will continue her antibiotics. The IV that was placed in Bozeman was not flushing well so we had to replace it. The replacement blew up her vein so we had to place another one in her foot. Tomorrow, we are scheduled for a PICC line procedure so we will be able to administer her antibiotics at home after we leave the hospital. It also makes drawing labs easier, no poking involved.
UncleAlan (Dr. Bielsky) stopped by to check on us and give "The Merc" some lovin'. She was napping when he came, but she will be happy to see him in the morning after she hasn't been able to eat for 4 hours prior to placing the PICC ;)
For spending our first Mother's Day in the hospital, it was very nice and I even got a little spoiled. Early this morning UncaDoo brought me a breakfast bagel with crispy bacon ;), UncaJ and TiaLaura delivered flowers and a card from Rod :), we got to go downstairs to the gift shop and enjoyed a bit of singing and playing guitar in the atrium on the way and our superhero Aimee brought me dinner and a rice krispie treat...my favorite.
"Here comes the sun......."
Wow, what a whirlwind! I'm so sorry your first Mother's Day was spent in the hospital. It sounds like you have some wonderful folks that spoiled you though ~ and you deserved it! I hope and pray you guys have all you need to get you through this. Today is another day closer to Mercy being well. Take care! Love, Steph
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ReplyDelete& Mom & Dad:
I guess no one said it is easy being a Mom & Dad. But for such a little girl to have to go through what you are, is just not fair. Mercymay
we are all out here for you with lots of love and what ever it takes to help get you well. Know that your fan club is growing every day.
We will be checking on you every day.
Love You All
Nannie & Pa Pa Mc
Good Morning Baby Girl and Your Mommy, Grandma sure wishes she could be there with you. Hopefully today you will have less discomfort in your little ab area. Sooo you get to see that favorite Dr. of yours. He sure knows how to comfort you. I am so happy you snd mommy have loads of trust. Grandma and Grandpa are thinking of you every day, every moment and can hardly wait for you to return home to Bozema. XOXOXO
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