Friday, June 3, 2011

Let the sun shine down.....

Well, we are embarking on our 2nd week at the RMH. Crazy how fast time goes.  Dinner has been prepared by volunteers almost every night except Memorial Day. The Mile High Harley Davidson Chapter came by and passed out toys to the kids and let them take pictures with their bikes. I thought dressing Mercy in her I <3 (heart) MOM onesie was appropriate since I see alot of MOM tattoos on bikers, steroetypical for sure but funny.  Of course, MercyMay was a hit.  One fella even offered his liver, which was very thoughtful of him. I chuckled and said "no thank you, we're looking for a more lively liver". He  thought that was the funniest thing ever.  Yesterday, there was a lady volunteering chair massages in the lobby, I missed that one unfortunately.
So far, we've had a a few check-up appointments (labs have steadily elevated), three successful feeding tube placements (one with help, two by myself :), and stool gone acholic (lol....kinda like girls gone wild, but not really).   The purpose of the feeding tube is to "plump her up" and keep her in good condition come time for the transplant, so far she has not gained any weight. In fact she has been 6.7 kg consistently. We will increase the strength and duration of her feedings starting tonight.  In the meantime, still waiting for "The Call".....
FUN REPORT:
As awesome as the RHM is, the walls start to close in pretty fast so we are fortunate to have people near that come scoop us up for some fun.  Gotta take advantage of the good days. We have spent an afternoon in the park having lunch, cooperatively cooked dinner at the RMH with a group of friends, took a supply run to Target, had a fantastic dinner with friends at their home, checked out the Art Walk in downtown Denver and took a visit to the zoo.  THANK YOU!!
Daddy should be pulling in anytime, he is driving down for a weekend visit.  It's been almost a month since we have seen him so we are very excited for his arrival!

4 comments:

  1. We are so glad to here the up date on all of you every week.I'm really glad to here Rod is on his way down.
    Every one out here in Mercymay land are praying for a great transplant soon. Then maybe some kind of a norm for you all.Remember we all love you and are thinking about you all the time.
    Lots of love and kisses.
    Nannie & Pa Pa M

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  2. Glad Rod (daddy) is almost there. He is really excited to see his girls Have a wonderful wkend and hopefully get out and enjoy the sunshine.
    We were just out playing with your other kids and Mercy's friends. Nesta just wanted lots of Love. The other two are only interested in playing.
    I am sending you a pic.
    Love and Miss you guys lots xoxox
    Grnadma and Grandpa

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  3. Mercymay--You are such a special little girl. I know your grandma and grandpa McCullough from time spent at St. Vincent's. I have been following your trials through them for the past several months. I KNOW that the day will soon come for you to get your new liver and be on the road to recovery! Until then, keep smiling little one and keep your mom busy with feeding tubes, diapers, etc!! Love and prayers!
    Patti Lemmon--Garneill, MT

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  4. Thinking andPraying for you and your family.

    Waiting has got to be hard........Hang in there.......

    Christy from Billings MT.

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